These publications are examples of research made possible with data from CanPath and its regional cohorts.


Cohort Profile: The Ontario Health Study (OHS)

Authors: Victoria A Kirsh, Kimberly Skead, Kelly McDonald, Nancy Kreiger, Julian Little, Karen Menard, John McLaughlin, Sutapa Mukherjee, Lyle J Palmer, Vivek Goel, Mark P Purdue, Philip Awadalla

OHS’s cohort profile outlines its research platform’s history and value for the broader scientific community. OHS follows 225,000 over their lifetime, actively and passively, making de-identified genomic, environmental, lifestyle, and electronic health data available to cancer and chronic disease researchers.

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Lessons from Studies to Evaluate an Online 24-Hour Recall for Use with Children and Adults in Canada

Authors: Sharon Kirkpatrick, Anne Gilsing, Erin Hobbin, Nathan Solbak, Angela Wallace, Jess Haines, Alexandra Mayhew, Sarah Orr, Parminder Raina, Paula Robson, Jocelyn Sacco, Heather Whelan

This team looked at the Automated Self-Administered 24-h assessment tool and looked at 5 studies that looked at feasibility and accessibility There was a high acceptance of ADA24 in diverse samples but it was not always intuitive for everyone (kids and older adults).

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From consent to institutions: Designing adaptive governance for genomic biobanks

Authors: Kieran C.O’Doherty, Michael M.Burgess, KellyEdwards, Richard P.Gallagherd, Alice K.Hawkins, Jane Kayee VeronicaMcCaffrey David E.Winickoff

This paper outlined four principles regarding biobank governance: 1) recognizing participants as one entity 2) integrity 3) adaptive management 4) fit between the nature of a particular biobank and the specific structural elements of governance adopted. BC Generations was a working model for further discussion the outlines of the proposed governance.

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