These publications are examples of research made possible with data from CanPath and its regional cohorts.


Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies

Authors: Isabel Fortier, Paul R Burton, Paula J Robson, Vincent Ferretti, Julian Little, Francois L’Heureux, Mylène Deschênes, Bartha M Knoppers, Dany Doiron, Joost C Keers, Pamela Linksted, Jennifer R Harris, Geneviève Lachance, Catherine Boileau, Nancy L Pedersen, Carol M Hamilton, Kristian Hveem, Marilyn J Borugian, Richard P Gallagher, John McLaughlin, Louise Parker, John D Potter, John Gallacher, Rudolf Kaaks, Bette Liu, Tim Sprosen, Anne Vilain, Susan A Atkinson, Andrea Rengifo, Robin Morton, Andres Metspalu, H Erich Wichmann, Mark Tremblay, Rex L Chisholm, Andrés Garcia-Montero, Hans Hillege, Jan-Eric Litton, Lyle J Palmer, Markus Perola, Bruce HR Wolffenbuttel, Leena Peltonen, Thomas J Hudson

The DataSHaPER is being used with CPTP to integrate their data in a way that it can easily be harmonized and pooled together.

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Pharmacogenomic data sample collection and storage: ethical issues and policy approaches

Authors: Yann Joly, Bartha Knoppers

This journal highlighted that CARTaGENE’s data would become more important over time in pharmocogenomic research to find out the association between genetic variations and drug-related effects. The ability of database creators to meet ethical issues will determine how pharmocogenomics can be integrated into mainstream clinical practice.

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Strategies for consulting with the community: The cases of four large-scale genetic databases

Authors: B. Godard, J. Marshall, C. Laberge, B.M. Knoppers

This journal outlined how CARTaGENE is taking a partnership approach so that they could get more participation in their studies and better develop their databases.

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