Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies
The DataSHaPER is being used with CPTP to integrate their data in a way that it can easily be harmonized and pooled together.
Pharmacogenomic data sample collection and storage: ethical issues and policy approaches
This journal highlighted that CARTaGENE’s data would become more important over time in pharmocogenomic research to find out the association between genetic variations and drug-related effects. The ability of database creators to meet ethical issues will determine how pharmocogenomics can be integrated into mainstream clinical practice.
Strategies for consulting with the community: The cases of four large-scale genetic databases
This journal outlined how CARTaGENE is taking a partnership approach so that they could get more participation in their studies and better develop their databases.