Publications

These publications are examples of research made possible with data from CanPath and its regional cohorts.

2010

The Canadian Partnership for Tomorrow Project: building a pan-Canadian research platform for disease prevention

Authors: Marilyn J. Borugian, Paula Robson, Isabel Fortier, Louise Parker, John McLaughlin, Bartha Maria Knoppers, Karine Bédard, Richard P. Gallagher, Sandra Sinclair, Vincent Ferretti, Heather Whelan, David Hoskin and John D. Potter

This article outlines the challenges a pan-Canadian cohort to look at cancer and chronic disease. The hope of this cohort will be that it could be a major research platform for the study of disease causation nationally, and internationally. They outlined how they got their participants, which provinces are involved, and how this specific cohort is unique.

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2010

Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies

Authors: Isabel Fortier, Paul R Burton, Paula J Robson, Vincent Ferretti, Julian Little, Francois L’Heureux, Mylène Deschênes, Bartha M Knoppers, Dany Doiron, Joost C Keers, Pamela Linksted, Jennifer R Harris, Geneviève Lachance, Catherine Boileau, Nancy L Pedersen, Carol M Hamilton, Kristian Hveem, Marilyn J Borugian, Richard P Gallagher, John McLaughlin, Louise Parker, John D Potter, John Gallacher, Rudolf Kaaks, Bette Liu, Tim Sprosen, Anne Vilain, Susan A Atkinson, Andrea Rengifo, Robin Morton, Andres Metspalu, H Erich Wichmann, Mark Tremblay, Rex L Chisholm, Andrés Garcia-Montero, Hans Hillege, Jan-Eric Litton, Lyle J Palmer, Markus Perola, Bruce HR Wolffenbuttel, Leena Peltonen, Thomas J Hudson

The DataSHaPER is being used with CPTP to integrate their data in a way that it can easily be harmonized and pooled together.

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2006

Pharmacogenomic data sample collection and storage: ethical issues and policy approaches

Authors: Yann Joly, Bartha Knoppers

This journal highlighted that CARTaGENE’s data would become more important over time in pharmocogenomic research to find out the association between genetic variations and drug-related effects. The ability of database creators to meet ethical issues will determine how pharmocogenomics can be integrated into mainstream clinical practice.

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2004

Strategies for consulting with the community: The cases of four large-scale genetic databases

Authors: B. Godard, J. Marshall, C. Laberge, B.M. Knoppers

This journal outlined how CARTaGENE is taking a partnership approach so that they could get more participation in their studies and better develop their databases.

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